RARE Toolkits

Below is a list of all of our current RARE Toolkits.

ADVOCATING FOR YOUR CHILD WITH A RARE DISEASE AT THEIR SCHOOL
Educational Support – ISFP
Educational Support – ISFP

Special Educational Support - ISFP

If a child is under age three and is found eligible for an early supports and services program or early intervention program (names vary depending on the state), an Individualized Family Service Plan (IFSP) is developed. This plan is created around the family’s concerns, priorities and resources, not just the child’s, and builds on family strengths. It is a process designed to facilitate the child’s development and serve as a roadmap for the early intervention system.

Involvement of other team members will depend on what the child needs. These other team members could come from several agencies and may include medical people, therapists, child development specialists, social workers, child nutrition department (foodservice director) and others.

Note: Some states continue IFSPs after age 3.

For more information on IFSPs, see the Resource Guide.

Infants and Toddlers: IFSP (Individualized Family Service Plan)
This video simply explains what an IFSP is.