RARE Toolkits

Below is a list of all of our current RARE Toolkits.

SO YOU THINK YOU WANT TO START A NONPROFIT
        
INTRODUCTION
INTRODUCTION

So You Think You Want to Start a Nonprofit....?

When one learns that s/he or a loved one has been diagnosed with a devastating disease, many feel hopeless and vulnerable. However, many turn this challenge into creating action. As their loved one’s biggest advocates, they seek to improve their quality of life by spreading awareness, encouraging research, and building much-needed support networks.

Through this toolkit, you will come to understand that creating a nonprofit organization is just one of the many ways that you can achieve any of these goals!

Nonprofit organizations (also known as not-for-profit organizations, 501(c)(3) organizations or tax-exempt organizations) positively contribute to our communities—both locally and globally.

Forming a nonprofit is not a decision to be taken lightly. It can be a daunting process, but this toolkit is here to help! From answering essential preliminarily questions to exploring alternative options, this toolkit will help prepare you for this journey.

Please be sure to check out all of the toolkit’s components (Perspectives section, Resource Guide and Supplemental Materials) in case you get stuck!

This toolkit is sponsored by:

AlexionAmylinBioMarinFeinstein Kein HealthcareGenzymeGlaxoSmithKlineParabase GenomicsPfizerShireSigma Tau PharmaceuticalsSiren InteractiveViroPharma

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