RARE Toolkits

Below is a list of all of our current RARE Toolkits.



Content Proudly Provided by:

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Special Thanks to Our Contributors:

Maya Doyle, LCSW, PhD, Senior Social Worker, Pediatric Nephrology

Children’s Hospital at Montefiore, Bronx, NY

Kendall Gagliano, Patient with Intercranial Hypertension and Volunteer

The IHope Foundation

Ilana Jacqueline, Patient Advocate and Blogger

Let’s Feel Better

Jackie James, Parent of a Child with Mucolipidosis Type III and Board Member

International Advocate for Glycoprotein Storage Diseases

Kathi Kayo, Founder

The IHope Foundation

Julie Raskin, Executive Director

Congenital Hyperinsulinism International

Alyssa Zeigler, Board Member

Hereditary Colon Cancer Foundation


gg thank you