DEI Charlene Son-Rigby addresses Health Equity at V-BID Summit Global Genes CEO Charlene Son Rigby spoke at the virtual V-BID Summit on March 8th, 2023. The […] Read more
Drug Development Data DIY 3: Developing Collaborative Research Networks These 7 videos will take you through Developing Collaborative Research Networks, part 3 of the Data DIY […] Read more
Drug Development Data DIY 1: The Why’s and How’s of Data Collection These 5 videos will take you through the Why’s and How’s of Data Collection, part 1 of […] Read more
Drug Development Data DIY 2: Data Trusts, Governance and Collection Platforms These 7 videos will take you through Data Trusts, Governance and Collection Platforms, part 2 of the […] Read more
Drug Development Data DIY 4: Becoming a Data-Centric Community These 7 videos will take you through Becoming a Data-Centric Community, part 4 of the Data DIY […] Read more
Diagnosis RDDS 2022 Webinar: Getting Your Community Ready for Clinical Trials This is the second in a series of three videos in conjunction with the Rare Drug Development […] Read more
Diagnosis Grandparents as Caregivers: Patient Advocacy Summit Session Grandparents as Caregivers was part of the Caregivers Track at the Patient Advocacy Summit in San Diego, […] Read more
Diagnosis The RARE Siblings Experience: Patient Advocacy Summit Session The RARE Siblings Experience puts the focus on the siblings of individuals with rare disease at the […] Read more
Drug Development How to Upload Genetic Reports on RARE-X Global Genes/RARE-X Sr Director of Scientific Programs Karmen Trzupek explains how to upload genetic reports in […] Read more
