Day 2: Track 1, Developing Volunteer Leaders, Speakers: Louise Vetter, Eveline Honig
September 11, 2020
Related
Metamorphosis Mine: a RAREly Told Stories Film about Scleroderma
In February of 2024, Global Genes together with The Disorder Channel presented a workshop, RAREly Told Stories, […]
Read moreWEBINAR: Showing Up 101
On August 15th, Global Genes hosted the webinar “Showing Up 101”. This session is a gently guided, […]
Read moreMaurya’s Rare Odyssey – a RAREly Told Stories film about Hereditary Spastic Paraplegia SPG4
In February of 2024 Global Genes together with The Disorder Channel presented a workshop, RAREly Told Stories, […]
Read moreRARE Storytelling Webinar
On July 16th, Global Genes hosted a RARE Storytelling Webinar for those in the rare disease community […]
Read morePartnerships in Action — RARE-X Exchange
Partnerships in Action was part of the 2024 RARE Drug Development Symposium’s RARE-X Users Forum Moderator: Charlene […]
Read moreUnlocking Insights Together: The Power of Data Collaboration — RARE-X Exchange
Unlocking Insights Together: The Power of Data Collaboration was part of the 2024 RARE Drug Development Symposium’s […]
Read moreIntegrating Clinical & Patient Reported Data: RARE-X Exchange
Integrating Clinical & Patient Reported Data was part of the 2024 RARE Drug Development Symposium’s RARE-X Users […]
Read moreRARE Pride: A Queer Conversation with André Marcel Harris
On June 11, 2024, Global Genes hosted a forum for stakeholders in the rare disease community to […]
Read moreRARE Pride: A Queer Conversation with Jas Madhavan
On June 11, 2024, Global Genes hosted a forum for stakeholders in the rare disease community to […]
Read more