Videos

Global Genes LIVE!: Elevate Natural History Study Planning and Reach

December 15, 2020

Patient organizations play a critical role in leveraging their communities’ data to drive innovation and access to therapies. Learn how you can develop the capacity at your own organization for improved data collection and governance. Explore methodologies for data collection and registry models, and start accelerating your research immediately. Featuring Nathan Peck, Luke Rosen, Megan O’Boyle and Dr. Hetanshi Naik.

 

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