Rare Disease Research: Getting Your Disease Noticed

September 11, 2020

When a disorder is rare, it can be difficult to identify a healthcare professional or researcher with experience in that particular diagnosis. In this session, listen to experts who have mastered the art of identifying ways to bring their cause to the forefront and learn how you can develop partnerships with academic researchers and grow your resource library. Obtain best practices on how to contact the right researcher and increase research efforts.


Speakers: Bo Bigelow, Richard Taylor PhD


Stay Connected

Sign up for updates straight to your inbox.