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Lunch & Learn: Grant Writing 101
Lauren Isbell, CEO of Nevus Outreach, outlines basic grant writing skills and walk through a check-list to […]
Read moreLunch & Learn: Marketing Strategies And Best Practices
During this lunch and learn webinar with Global Genes’ marketing team, you will learn strategies to increase […]
Read moreGlobal Genes’ Mackenzie Abramson continues her Rare Disease Week adventures in Washington D.C.
Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes on […]
Read moreGlobal Genes’ Mackenzie Abramson takes on Washington D.C. at Rare Disease Week
Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes […]
Read moreRAREly Told Stories Workshop
Have you wanted to tell your rare disease story as a documentary or a short video? Global […]
Read moreFibrous Dysplasia Diagnosis Inspires Camryn
FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright […]
Read moreMeet Wiley, an Angelman syndrome warrior
by Chloe Knouff Meet Wiley, a vibrant six-year-old who faces life with unwavering determination despite living with […]
Read moreBeginner’s Guide to Community Activation — RARE Advocacy Summit 2023
As part of the Community & Capacity Building track from the 2023 RARE Advocacy Summit, this panel […]
Read moreSpinal Muscular Atrophy Case Study — 2023 RARE Advocacy Summit
As part of the Rare Disease Master Class Science & Tech Innovation track from the 2023 RARE […]
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