RARE-X GDPR Overview

November 9, 2022

In this video, RARE-X’s Data Protection Officer, Barry Weber, explains how RARE-X achieves GDPR compliance and protects users on the RARE-X platform.

Lunch & Learn: Grant Writing 101

Lauren Isbell, CEO of Nevus Outreach, outlines basic grant writing skills and walk through a check-list to […]

During this lunch and learn webinar with Global Genes’ marketing team, you will learn strategies to increase […]

Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes on […]

Mackenzie Abramson, Senior Manager of Research Program Communications for Global Genes, Rare Patient and Advocate, takes […]

Have you wanted to tell your rare disease story as a documentary or a short video? Global […]

FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright […]

by Chloe Knouff Meet Wiley, a vibrant six-year-old who faces life with unwavering determination despite living with […]

As part of the Community & Capacity Building track from the 2023 RARE Advocacy Summit, this panel […]

As part of the Rare Disease Master Class Science & Tech Innovation track from the 2023 RARE […]