RARE-X October Science & Research Update
October 21, 2022
Karmen Trzupek, Senior Director of Scientific Programs for RARE-X, summarizes the October Science and Research Update Call presented to patient community leaders on October 20, 2022. In this update, Karmen covers the RARE-X Data Analysis Platform available to researchers, the Xcelerate RARE: Rare Disease Open Science Data Challenge, new surveys coming in December, and how RARE-X has achieved GDPR compliance. She also answers questions from the call submitted by onboarded patient groups. If you have questions you would like Karmen Trzupek or Vanessa Vogel-Farley to answer in future calls, please submit them via this link.
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