This is the second in a series of three videos in conjunction with the Rare Drug Development Symposium, presented by Global Genes, in conjunction with The Orphan Disease Center of the University of Pennsylvania.
Advocacy leaders have a vital role to play in educating their communities about research opportunities and providing the information they need to make good decisions regarding participation.
In this webinar, you will learn:
* How to decide which researchers to support – and why
* What questions to ask researchers and clinicians
* Ways to provide opportunities to hear from scientists
* Resources that can help your community understand new treatment options
Featured Speaker:
Gabrielle Rushing, PhD | Director of Research, TSC Alliance Webinar
Sponsor: Jazz Pharmaceuticals
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