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Read moreVirtual Partnering Event: IN-PART & Global Genes/RARE-X
During this webinar presented with IN-PART, Karmen Trzupek, Senior Director of Scientific Programs at Global Genes, shared […]
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Rare drug development cannot move forward, or move forward quickly without collaboration. The ecosystem works best when […]
Read moreHow Can Patient Organizations Be Research Ready?
Panelists from the 2023 RARE Drug Development Symposium discuss how patient advocacy organizations can be research ready, […]
Read moreHow Can Patient Advocates Be Involved in Rare Therapy Development?
To answer the question of HOW patient advocates can be involved in rare drug development, we must […]
Read moreHow Does Global Genes Support Advocates Looking to Expand Research Programs?
Today’s rare disease advocates are on the forefront of drug development – whether in fundraising, raising awareness, […]
Read moreCEO Charlene Son Rigby Talks Drug Development and the Rare Research Roadmap
Charlene Son Rigby, CEO of Global Genes, talks about rare drug development, how patient advocates can contribute […]
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