Technologies for Learning about Rare Disease from Patients and Caregivers

September 11, 2020

Improving clinical care, treatment, and therapies is only possible by collecting and sharing data. There are many ways to track symptoms and their progression, aggregating the information so that it is available to you and your communities. Using technology to track the severity of the symptoms may lead to better drug development and targeted timing of treatments. Listen to experts who have identified and tracked symptoms related to a rare disease and discover what methods are available.


Speakers: Amy Gray, James Valentine, JD & Maya Brown Zimmerman, MPH


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