The Value of Rare Disease Therapies: Patient Perspectives Needed

September 11, 2020

There is a lot of public debate surrounding the value of rare disease therapies. How do we ensure that the perspectives of patients, families, and advocates are included in these discussions and assessments? Advocates and economic experts will discuss new thoughts on the value of therapies and how advocates can get involved.


Speakers: Khrystal Davis, JD, Sara Van Geertruyden


Stay Connected

Sign up for updates straight to your inbox.