Youth and Young Adult Support

Global Genes encourages all youth and young adults who are affected by or interested in rare disease to get engaged by implementing their personal initiatives. We can offer guidance and resources to assist and support your goals and endeavors as emerging advocates in your own community. No goal is too small and we cannot wait to help you on your way!

Ways Global Genes Can Help:

  • Supply your initiative with ribbons, bracelets, or Global Genes informational material
  • Provide access and training for our text-to-donate app to raise funds for Global Genes
  • Consultation or guidance
  • Connections and introductions to local rare disease groups or affiliates in your community for fundraising, volunteering, and partnership opportunities
  • Share your initiative in the Global Genes network
  • Donate a raffle gift bag

If you are interested in any resources offered by Global Genes, please contact Ashley Yee, Senior Manager at ashleyy@globalgenes.org.

 

             

 

 logoAbout We Are More!

The Global Genes Youth and Young Adult Support Program was inspired by the We Are More initiative.

We Are More was created following a young rare advocacy meeting at the 2015 Global Genes RARE Patient Advocacy Summit. These young advocates came together to discuss the challenges of living with a rare disease and brainstorm how they could further connect the community and empower others like them.

WAM! Strives to inspire teens and young adults by raising awareness and advocating for those living with disabilities, chronic or mental illness through the use of social media as a key platform to start conversations, provoke thought and motivate change. To learn more about WAM check them out on social media!