Community Resource
February 6, 2019 By International WAGR Syndrome Association
Resource List for Rare Disease Patient Registries
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February 5, 2019 By Global Genes
Setting Up Your RARE Portal
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Toolkit
January 31, 2019 By Global
Rare Insight: Building a Stronger Financial Future
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Toolkit
January 31, 2019 By Global
Finding your Fundraising Strategy
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Toolkit
January 31, 2019 By Global
Support Groups: A Rare Advocate’s Guide to Connection
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Toolkit
January 31, 2019 By Global
How to Promote Your Rare Disease Story through Social Media
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Toolkit
January 31, 2019 By Global
Building a Care Notebook
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Toolkit
January 31, 2019 By Global
Exploring Treatment Options for Rare Disease: Pediatric Palliative Care
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Toolkit
January 31, 2019 By Global
Keys to Help Rare Disease Patients Ensure a Successful Surgery
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Toolkit
January 31, 2019 By Global
Rare Disease Registries: Advancing Disease Understanding, Treatments, and Cures
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Toolkit
January 30, 2019 By Global
Using Storytelling To Raise Awareness For Your Rare Disease
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Toolkit
January 29, 2019 By Global
Exploring Treatment Options For Rare Disease: Cord Blood Transplants
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