Webinar
July 9, 2019 By Global Genes
RARE Webinar: Thyroid Eye Disease Awareness and Education
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Webinar
June 14, 2019 By Global Genes
RARE Webinar: Precision Medicine
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Webinar
May 31, 2019 By Global Genes
RARE Patient Impact Grant Webinar
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Webinar
May 28, 2019 By Global Genes
RARE Webinar Poster Presentation 3
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Webinar
April 25, 2019 By Global Genes
RARE Webinar Poster Presentation 2
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Webinar
March 14, 2019 By Global Genes
RARE Webinar Poster Presentation 1
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March 4, 2019 By Global Genes
Strength in Numbers: Because having a rare disease isn’t rare
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Community Resource
February 6, 2019 By International WAGR Syndrome Association
Resource List for Rare Disease Patient Registries
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February 5, 2019 By Global Genes
Setting Up Your RARE Portal
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Video
February 5, 2019 By Global
Summit Day 2: Session 4- Patient-Centered Benefit-Risk Assessment: Why It Matters To You
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Video
February 5, 2019 By Global
Summit Day 2: Session 4- Deep Dive, Mobilizing Your Community For Patient-Focused Drug Development
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Video
February 5, 2019 By Global
Summit Day 2: Innovations in Science Presentation Brief- Project Violet, Jim Olsen, PhD
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