September 17, 2019 By Global Genes
NEXT: Imagining the Future of Rare Disease
Read More
March 4, 2019 By Global Genes
Strength in Numbers: Because having a rare disease isn’t rare
Read More
February 5, 2019 By Global Genes
Setting Up Your RARE Portal
Read More
Video
February 5, 2019 By Global
Summit Day 2: Session 4- Patient-Centered Benefit-Risk Assessment: Why It Matters To You
Read More
Video
February 5, 2019 By Global
Summit Day 2: Session 4- Deep Dive, Mobilizing Your Community For Patient-Focused Drug Development
Read More
Video
February 5, 2019 By Global
Summit Day 1: Opening Remarks and Session 1: Caregivers- Strategies to stay Afloat
Read More
Video
February 5, 2019 By Global
Summit Day 2: Opening Remarks
Read More
Video
February 5, 2019 By Global
RARE Champion of Hope Awards Celebration
Read More
Toolkit
January 31, 2019 By Global
Rare Insight: Building a Stronger Financial Future
Read More
Toolkit
January 31, 2019 By Global
How to Promote Your Rare Disease Story through Social Media
Read More
Toolkit
January 31, 2019 By Global
Building a Care Notebook
Read More
Toolkit
January 31, 2019 By Global
Exploring Treatment Options for Rare Disease: Pediatric Palliative Care
Read More
Load More
X