World Rare Disease Day 2015 Planning Webinar

(recorded webinar /Ilana Jacqueline’s PR Presentation/ PDF slides)carerare

With World Rare Disease Day right around the corner (February 28th. 2015), this session explored event ideas to create awareness for your specific rare disease as well as the entire rare disease community as a whole.

Topics included:

  • Hosting your own Rare Disease Day events
    • Schools
    • Businesses
    • General Community
  • Reaching out to the media to share your story
  • Advocating in Washington D.C. during Rare Disease Week
    … and more!

Moderator: Carrie Ostrea, Global Genes