2012 RARE Tribute To Champions of Hope


The 1st Annual “RARE Tribute to Champions of Hope” was held on Thursday, September 27, 2012  at The Balboa Bay Club & Resort in Newport Beach, CA.   More than 400 guests were in attendance to celebrate the pioneering achievements of individuals and corporations in the rare and genetic disease community.

2012 Global Genes | RARE honorees included:

Recording artist and “American Idol” season 5 finalist Elliott Yamin, shared the stage with Gracie Van Brunt, a young girl battling a rare genetic disease called Shwachman-Diamond Syndrome.  Guests enjoyed special musical performances by recording artist Chris Mann and singer-songwriter Katrina Parker, both fan favorites and stars of the second season of the NBC hit television show “The Voice.”

“Grey’s Anatomy” star Jason George joined actors Nestor Serrano (Act of Valor, The Negotiator, The Insider, Secretariat) and Meagan Tandy (Jane By Design, 90210, CSI: NY, Dark Blue) to introduce some of the evening’s distinguished honorees.

Two major events followed the Tribute Gala on Friday, September 28.  A RARE Patient Advocacy Summit was to be held, where patient communities engaged with each other and experts on various topics ranging from legislation to non-profit business models.  On Friday evening, Global Genes hosted a screening  in Hollywood with the Kauffman Foundation to showcase a new rare disease documentary called Here. Us. Now.

2012 Corporate Sponsors

 

2012 Product Sponsors | Donors