We’re here for you. How can we help?
Global Genes is committed to providing information, resources, and connections to all communities affected by rare disease. For more information or help, visit the following pages or contact us about:
Patient Services
Are you a patient, caregiver/care partner, or healthcare provider looking for information about finding a specialist, genetic counseling or testing, clinical trials, or getting a diagnosis? Contact our Patient Services Guides.
Get information about Global Genes events and webinars, community events, or list your event on the Global Genes Events Hub. Have questions about a Global Genes event or need help registering? Email us at [email protected]

Organization/Support Group Leaders & Global Advocacy Alliance
Learn more about how to join the Global Advocacy Alliance (formerly the Foundation Alliance), upcoming exclusive skill building resources, and more on the Alliance page or by emailing [email protected]
Community Portal
Join the RARE Portal Community to engage with your peers in a private online platform. Have questions about joining or want to request access? Visit the log-in page or email us at [email protected].

RARE Compassion Program
Medical students are paired with patients and families experiencing a rare diagnosis with the goal of gaining awareness for the challenges they encounter. Visit RARE Compassion Program or email [email protected] for more information.

We love learning about and working with like-minded organizations helping the rare and undiagnosed community, and want to work with you! Email us at [email protected] for more information.

Donations & Fundraising
Your donations help support the work Global Genes does to help serve the rare and undiagnosed communities across the world. Make a donation or email us at [email protected] with questions.

Corporate Support & Sponsorship Opportunities
Corporate and industry partners interested in supporting Global Genes events and initiatives can join the Corporate Alliance or email [email protected] to get more information about supporting the mission and work of Global Genes.

Marketing & Media Requests
Logo use, content partnerships, interview opportunities, media partnerships, and more – reach our marketing team at [email protected]
For all other requests or questions, please contact:

28 Argonaut, Suite 150, Aliso Viejo, CA 92656

(949) 248-RARE (7273)