Global Genes is committed to providing information, resources, and connections to all communities affected by rare disease. For more information or help, visit the following pages or contact us about:
Are you a patient, caregiver/care partner, or healthcare provider looking for information about finding a specialist, genetic counseling or testing, clinical trials, or getting a diagnosis? Contact our Patient Services Guides.
Get information about Global Genes events and webinars, community events, or list your event on the Global Genes Events Hub. Have questions about a Global Genes event or need help registering? Email us at [email protected].
Learn more about how to join the Global Advocacy Alliance (formerly the Foundation Alliance), upcoming exclusive skill building resources, and more on the Alliance page or by emailing [email protected]
Join the RARE Portal Community to engage with your peers in a private online platform. Have questions about joining or want to request access? Visit the log-in page or email us at [email protected].
Medical students are paired with patients and families experiencing a rare diagnosis with the goal of gaining awareness for the challenges they encounter. Visit RARE Compassion Program or email [email protected] for more information.
We love learning about and working with like-minded organizations helping the rare and undiagnosed community, and want to work with you! Email us at [email protected] for more information.
Your donations help support the work Global Genes does to help serve the rare and undiagnosed communities across the world. Make a donation or email us at [email protected] with questions.
Corporate and industry partners interested in supporting Global Genes events and initiatives can join the Corporate Alliance or email [email protected] to get more information about supporting the mission and work of Global Genes.
Logo use, content partnerships, interview opportunities, media partnerships, and more – reach our marketing team at [email protected].
(949) 248-RARE (7273)