We’re here for you. How can we help?
Global Genes is committed to providing information, resources, and connections to all communities affected by rare disease. For more information or help, visit the following pages or contact us about:
Get information about Global Genes events and webinars, community events, or list your event on the Global Genes Community Events Hub. Have questions about a Global Genes event or need help registering? Email us at [email protected].Email Us
Organization/Support Group Leaders & Global Advocacy Alliance
Learn more about how to join the Global Advocacy Alliance (formerly the Foundation Alliance), upcoming exclusive skill building resources, and more on the Alliance page or by emailing [email protected]Email Us
RARE-X Data Collection Platform
Get more information about Global Genes’ RARE-X Data Collection Platform – whether you’re representing an advocacy organization, a researcher, or individual with a rare disease at RARE-X.org.Contact Us Here
Join the RARE Portal Community to engage with your peers in a private online platform. Have questions about joining or want to request access? Visit the log-in page or email us at [email protected].Visit the RARE Portal
RARE Compassion Program
Medical students are paired with patients and families experiencing a rare diagnosis with the goal of gaining awareness for the challenges they encounter. Visit RARE Compassion Program or email [email protected] for more information.Email Us
We love learning about and working with like-minded organizations helping the rare and undiagnosed community, and want to work with you! Email us at [email protected] for more information.Email Us
Donations and Support
Your donations help support the work Global Genes does to help serve the rare and undiagnosed communities across the world. Make a donation or email us at [email protected] with questions.Donate Now
Corporate Support & Sponsorship Opportunities
Corporate and industry partners interested in supporting Global Genes events and initiatives can join the Corporate Alliance or email [email protected] to get more information about supporting the mission and work of Global GenesJoin the Corporate Alliance now
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