Global Genes is dedicated to eliminating the burdens and challenges of rare diseases for patients and families.
What We Stand For
A globally connected community equipped to eliminate the challenges of rare disease, united by a determination to support and provide what they need to take action and thrive.
Join a dedicated team who works together to build awareness, educate the rare community, and provide critical connections and resources to equip patients, families, and advocates.
Need help getting connected? Have question about an event or resource? Want to partner or support Global Genes efforts? Not sure where to start? We’re here for you.
You can login here to your account or you can register to start saving, exploring and sharing resources and news. Connect with our community now!
Register to get the latest updates
Please join the RARE Portal to add diseases of interest to your personal profile. By creating a profile, you can receive news, resources and updates related to this disease as well as many other benefits.
Register to share with the community
You must be Corporate Alliance or Foundation Alliance member to contribute resources. Please contact us if you have a resource you’d like us to consider.
Contribute with resources
Alliance or Foundation Alliance member to contribute resources. Please contact us if you have a resource you’d like us to consider.
Be a Guest BLOGGER
Thank you for your interest in becoming in a guest blogger. Please email [email protected] for more information.
