RARE Concierge – Patient Services
Free, personalized service for patients, caregivers, and healthcare providersLearn More
Join Our Community – RARE Portal
Login or request an account to join the Global Genes community in the RARE portalJoin Portal
Grant opportunities for the rare disease communityLearn More
Share Your Story
Although individual diseases are vastly different, our stories and experiences bond us as a rare community. Share your story as a patient, advocate, caregiver or supporter to be featured in our community stories.