Share Your Story

Although individual diseases are vastly different, our stories and experiences bond us as a rare community.
Share your story as a patient, advocate, caregiver or supporter to be featured in our community stories.
Read stories shared by the rare disease community here.

Please keep your entry to no longer than 1000 words.

By selecting “YES” you are agreeing to the terms and conditions to submit your story and photo. You grant Global Genes permission to use your story, photo, and name on our website and social media accounts as part of our ongoing rare disease awareness.