Share Your Story

Although individual diseases are vastly different, our stories and experiences bond us as a rare community.
Share your story as a patient, advocate, caregiver or supporter to be featured in our Community


By selection “YES” you are agreeing to the terms and conditions to submit your story and photo. By clicking the button “YES”, you grant Global Genes permission to use your story, photo, first name, state and country on our website, and as part of our ongoing programs to increase rare disease awareness.