Share Your Story

Although individual diseases are vastly different, our stories and experiences bond us as a rare community.
Share your story as a patient, advocate, caregiver or supporter to be featured in our community stories.
Read stories shared by the rare disease community here.

Title *

Story *

Please keep your entry to no longer than 1000 words.

Story Author *

Rare Patient or Advocate First Name

Rare Patient or Advocate Last Name

Country

State

Rare Disease Affiliation

Main Image *

Additional Images

Image

Add Image

Email *

Permission to publish *

By selection “YES” you are agreeing to the terms and conditions to submit your story and photo. By clicking the button “YES”, you grant Global Genes permission to use your story, photo, first name, state and country on our website, and as part of our ongoing programs to increase rare disease awareness.