may, 2022
Pre-Webinar RDDS: What Does It Take to Become a Research-Ready Organization? You are invited to a Pre-RDDS Webinar What Does It Take to Become a Research-Ready Organization? When: May 12, 2022 06:00 PM
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Pre-Webinar RDDS: What Does It Take to Become a Research-Ready Organization?
After registering, you will receive a confirmation email containing information about joining the meeting.
About the Event:
What Does It Take to Become a Research-Ready Organization? Understanding the research process and making sure you have the right pieces in place can attract researchers and industry investors. This webinar will cover terms and concepts you need to know to prepare your community to engage with researchers and biotech, including:
Karsten is currently the Associate Director of Translational Biology at Travere Therapeutics. Karsten is a passionate scientist with almost two decades of research experience. When he embarked on this career path, he was motivated by scientific curiosity and the desire to help people who are suffering from disease. This continues to be Karsten’s driving force. It inspires him to work hard and to take on challenges that may seem insurmountable. In the past years working in biotech, Karsten has been fortunate enough to witness how novel therapies can impact the lives of patients. Karsten feels that this is his calling, in particular in rare diseases that are neglected and have no available therapies. To find treatments for these diseases, he believes we need to have all stakeholders involved. Karsten is excited to work with patient groups, academic and governmental institutions, and specialized research laboratories to discover and develop new ways of treating patients. Karsten firmly believes that together we will make a difference.
(Thursday) 6:00 pm ET - 9:00 pm ET
Pre-RDDS Webinar: Getting Your Community Ready for Clinical Trials You are invited to a Zoom meeting. When: May 20, 2022 10:00 AM Eastern Time (US and Canada) Register here. After
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Pre-RDDS Webinar: Getting Your Community Ready for Clinical Trials
You are invited to a Zoom meeting.
When: May 20, 2022 10:00 AM Eastern Time (US and Canada)
Register here. After registering, you will receive a confirmation email containing information about joining the meeting.
About the Event:
Getting Your Community Ready for Clinical Trials: Advocacy leaders have a vital role to play in educating their communities about research opportunities and providing the information they need to make good decisions regarding participation. In this webinar, you will learn:
Gabrielle joined the TSC Alliance staff in December 2019 and works remotely from Nashville, TN. Her efforts focus on stimulating innovative research while growing the Natural History Database and Biosample Repository projects. Recently, Gabrielle launched a Whole Genome Sequencing initiative and created the first ever Self-Report Portal to collect patient-reported outcomes from individuals affected by tuberous sclerosis complex (TSC). She completed her PhD at Vanderbilt University, studying TSC brain tumor development and neural stem cells under the guidance of Dr. Rebecca Ihrie. Prior to joining the TSC Alliance, Gabrielle served as Project Manager for the PREDICT (Pharmacogenomic Resource for Enhanced Decisions in Care and Treatment) program at Vanderbilt University Medical Center. In her free time, Gabrielle enjoys listening to live music, spending time with her dog Willow, and working out.
Kari Luther Rosbeck celebrates 20 years at the TSC Alliance in 2021 and has been involved in nonprofit fundraising and volunteer management for more than 30 years. During Kari’s tenure as President & CEO, the TSC Alliance established a comprehensive research program fostering collaboration with industry and academia to move treatments for TSC forward in a more expedited way. The organization also took an active role in educating the community to diminish time for recruitment, including pivotal trials for two FDA-approved drugs to treat TSC.
(Friday) 10:00 am ET - 1:00 pm ET
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