Week in RARE

Week in RARE combines the RARE Health Equity Forum and RARE Advocacy Summit, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings. Join us September 25-28 in Kansas City!

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Upcoming Global Genes Events

Browse and find upcoming Global Genes in-person
or virtual RARE disease events by date and location hosted around the world.

* Global Genes does not sell conference/participant information or user data.


Week in RARE

September 25-28, 2024

Week in RARE combines the RARE Health Equity Forum and RARE Advocacy Summit, in addition to the RARE Champions of Hope awards ceremony and annual membership meetings.

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RARE Advocacy Summit

September 27-28, 2024

RARE Advocacy Summit is an unparalleled opportunity for advocates to forge meaningful connections with others in the rare disease community for future collaboration.

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RARE Health Equity Forum

September 28, 2024

Through plenary sessions, networking and interactive table talks, RARE Health Equity Forum empowers attendees with actionable tools and strategic insights to advocate for a more inclusive rare disease community.

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Past Global Genes Events

2023 RARE Advocacy Summit

The 2023 RARE Advocacy Summit convened rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies. Attendees gained insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies they could take home and implement to accelerate change.

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2023 RARE Health Equity Forum

The RARE Health Equity Forum convenes stakeholders in the rare disease space to identify ways to better serve marginalized populations within the rare disease community. In its third year, the event focused on the theme of “Equity In Action” and sessions provided attendees with actionable tools and strategic insights to support underserved and/or underrepresented patients within their community.

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2023 RARE Drug Development Symposium

The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. The 2023 event focused on collaboration – the foundation of success in rare disease research.

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2022 RARE Patient Advocacy Summit

The Summit forged meaningful connections with others in the rare disease community for future collaboration. Sessions provide attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies they can take home and implement immediately to accelerate change.

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2022 RARE Health Equity Summit

The RARE Health Equity Forum, hosted in partnership with the Rare Disease Diversity Coalition (RDDC) convenes rare disease stakeholders to identify collaborative efforts to address inequities in the care of patients with rare diseases. This event provided attendees with strategic insights and tools to empower and equip them to address racial, ethnic, gender, socioeconomic, and other disparities.

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