Global Genes is a globally connected community committed to eliminating the challenges of rare disease.
Together with our partners, we help people find and build communities, gain access to information, services, care and resources, and provide hope and support for the more than 400 million people affected by rare disease around the globe.
RARE Corporate Alliance
The RARE Corporate Alliance is a partnership of rare disease industry stakeholders committed to forging and supporting collaboration between industry and patient communities.Email us to become a member
RARE Drug Development Symposium
This signature event, hosted in partnership with the University of Pennsylvania Orphan Disease Center, provides a unique opportunity for stakeholders from patient communities, industry, and academia to work together on innovative approaches to moving through limiting factors and accelerating the development of new therapies for rare diseases.Support RARE Drug Development Symposium
RARE Advocacy Summit
Global Genes is excited to celebrate our 12th Annual RARE Patient Advocacy Summit in 2023! The RARE Patient Advocacy Summit has grown to be one of the world’s largest gatherings of rare disease patients, caregivers, advocates, and stakeholders.Support RARE Advocacy Summit
RARE Health Equity Forum
Presented in partnership with the Rare Disease Diversity Coalition (RDDC), the RARE Health Equity Forum brings together stakeholders from the rare disease community to identify the challenges that disproportionately affect underrepresented populations and define collaborative efforts to address those inequities.
Health Equity in RARE Impact Grants
The Health Equity in RARE Impact Grant program provides an opportunity for patient advocacy leaders to improve outreach strategies and address challenges that affect underserved and underrepresented patient communities.Learn More About the Program
RARE Mental Health Impact Grants
The RARE Mental Health Impact grant program provides an opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community–including children, siblings, adults, caregivers/care partners and those who are grieving.Learn More About the Program
RARE Meet-Ups Impact Grant
Global Genes is excited to continue to partner with advocacy organizations in their efforts to further their mission and work in the rare disease community. Through our RARE Impact Grant Program, Global Genes will provide financial support in addition to marketing, materials and resources for each Meet-Up.Learn More About the Grant
RARE Compassion Program
The RARE Compassion Program pairs medical students with patients and families living with a rare condition through a series of rotations, to help inspire interest and careers in rare disease care and research, and build the next-generation of future medical professionals as key advocates for their patients through patient-centric listening and interactions.Learn More about the Compassion Program
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