In partnership with    RDDC


It is important for you to know your family’s health history. It is one of the tools your doctor can use to keep you and your family healthy. Knowing your family’s health history can help them find out if a disease runs in your family, so they can watch for signs or test you or your family members before it becomes a problem, and also start treatment earlier. 

Since family history is such an important topic for everyone to understand, particularly communities of color, we have launched a new initiative in partnership with the Black Women’s Health Imperative/Rare Disease Diversity Coalition to address this. We hope to increase your knowledge and understanding of family history and genetic testing, help you get to a diagnosis quicker, and get better care.

Talking about your family’s health history can feel uncomfortable to some people, but don’t worry. Global Genes is here for you! We have information and resources to help you every step of the way. Scroll down to get more information on how to talk to your family and genetic testing. In addition, Patient Services can answer your specific questions and provide you with additional information.

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*Global Genes is committed to respecting the privacy of the patients and caregivers that we serve. When you choose to submit an inquiry through the RARE Concierge resource, we collect data that helps us to better understand the needs of the people who access this service. We DO NOT sell, trade or otherwise share information about you, except as described in our Privacy Policy. In submitting this form, I consent to having my personal data be processed in accordance with Global Genes’ Terms and Conditions.

Listen to what some of our amazing speakers have to say about knowing your family history and why it is so important!

  • Sarita Edwards – Rare Parent & Patient Advocate, CEO & President, The E.WE Foundation
  • Elle Cole – Rare Parent
  • Zarifa Roberson – Rare Patient
  • Barbara Harrison – Certified Genetic Counselor, Howard University College of Medicine
  • Garfield Clunie, MD – President, National Medical Association Region 1, Director, Maternal-Fetal Medicine, Obstetrics & Gynecology, The Brooklyn Hospital Center