The Global Genes RARE Disease Community is a private discussion group for patients, caregivers, members of non-profit patient advocacy groups.
Make meaningful connections with others who are experiencing a similar health journey. Connect with your peers.
Engage in meaningful conversations and discussions dedicated to important topics in rare disease such as Financial Advocacy, Diversity and Health Equity, or Gene Based Diagnosis and what ever else is a concern to people like you facing rare diseases.
Share personal stories to support one another. Read patient stories and be inspired.
View upcoming events, view event details, and share your own events with the rare disease community.
Do you have feedback and/or suggestions for the Global Genes RARE Disease Community?
We’d love to hear from you. Global Genes is committed to making this a user-friendly space to advance knowledge and skills in rare disease.