Global Genes Privacy Policy
Last Updated June 26, 2023
This Privacy Notice provides details of the personal data we collect from you, what we do with it, how you might access it and who it might be shared with.
If you are a participant in the RARE-X Data Collection Program, please see our RARE-X Data Collection Program Privacy Policy to learn more about managing your rights, including limiting the sharing of your personal data and deleting your account for that program.
Our Contact Information (Data Controller)
Global Genes
28 Argonaut, Suite 150
Aliso Viejo, CA
92656
United States
Telephone: +1 949.248.7273
Company Email: [email protected]
What we do with your personal data
We process personal data only for the purpose for which they are collected. The purpose is dependent on whether you use only our website, or additionally, our services. If you use our services you are required to register and we collect your personal data. We use this personal data for the provision of the service or the performance of the contract. We may use your personal data for other similar purposes, including marketing and communications, but that will only occur in the case we have your consent or another legal justification for doing so.
From our Survey Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Participate in focus group | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Community Portal Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Community engagement | 6(1)(f) – it’s in our legitimate interest | Until consent withdrawn |
| Newsletter | 6(1)(f) – it’s in our legitimate interest | Until consent withdrawn |
| Program communications | 6(1)(f) – it’s in our legitimate interest | Until consent withdrawn |
From our Health Equity Grant Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Application process | 6(1)(b) – steps are required prior to a contract with the data subject | Until consent withdrawn |
From our Patient Advocacy Group Leaders we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Maintain continued engagement and support with the patient advocacy group | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our Mental Health Grant Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Application process | 6(1)(b) – steps are required prior to a contract with the data subject | Until consent withdrawn |
From our Champion of Hope Nominator we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Award notification | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Meet-Up Grant Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Application process | 6(1)(b) – steps are required prior to a contract with the data subject | Until consent withdrawn |
From our RARE Health Equity Forum Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Event registration | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Inclusivity measurement | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Potential speaker recruitment | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Advocacy Summit Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Event registration | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Inclusivity measurement | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Participate in expert office hours | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Potential speaker recruitment | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Compassion Program Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Pair RARE Compassion Program participants | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Provide update on professional development | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Drug Development Symposium Stipend Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Application process | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Drug Development Symposium Poster Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Verify poster submission | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Drug Development Symposium Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Event registration | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Inclusivity measurement | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our Corporate Alliance Representatives we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Collect and update clinical trial information | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Identify clinical trial representative | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE X Data Collection Program Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Aggregate and analyze data | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Share with researchers to accelerate diagnosis and treatments | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our Stay Connected Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our Program Interest Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Provide program information | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our Open Science Data Challenge Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Communicating about research related to the RARE-X dataset | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Advocacy Summit Exhibitor Applicants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Application process | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Advocacy Summit Stipend Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Application process | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Advocacy Summit Poster Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Verify poster submission | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Health Equity Forum Stipend Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Application process | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Health Equity Forum Poster Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Verify poster submission | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our Global Advocacy Alliance Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Contact management | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Newsletter | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Program communications | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
| Update contact information for the Global Advocacy Alliance members | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
From our RARE Concierge Participants we process and retain personal data for the following purposes and periods, with the applicable legal basis.
| Processing purpose | Legal basis | Retention period |
| Respond to information inquiries | 6(1)(a) – we have the data subject’s consent | Until consent withdrawn |
What personal data do we collect?
The personal data we collect depends on whether you just visit our website or use our services. If you visit our website, you do not need to provide us with any personal data. However, your browser transmits some data automatically, such as the date and time of retrieval of one of our web pages, your browser type and settings, your operating system, the last web page you visited, the data transmitted and the access status, and your IP address.
If you use our services, personal data is required to fulfill the requirements of a contractual or service relationship, which may exist between you and our organisation.
We collect:
- Email, Social Networks
- Name
- Telephone contact details
- Organization
- Organization and Title
- Disease of Interest
- Gender
- Role in Rare
- Location Information
- Professional designation
- Title
- Pronouns
- School Attending
- Age
- Medical School
- Medical Specialty
- Preferred Language
- Residency Institution
- Year in School
- Birthdate
- Education History
- Symptoms
- Marital Status
- Type of Insurance
We collect special category personal data and do so under the following legal basis:
9(2)(a) – Explicit consent of the data subject
- Health –
- Racial or Ethnic Origin
- Genetic data
- Sex life or Sexual orientation
- Biometric data
Who might we share your personal data with?
To maintain and improve our services, your personal data may need to be shared with or disclosed to service providers, other Controllers or, in some cases, public authorities. We may be mandated to disclose your personal data in response to requests from a court, police services or other regulatory bodies. Where feasible, we will consult with you prior to making such disclosure and, in order to protect your privacy, we will ensure that we will disclose only the minimum amount of your information necessary for the required purpose.
We transfer personal data to the following organisations and countries:
| Data subject type | Organisation name | Type | Country |
| RARE Concierge Participants | AirCall | Processor | United States |
| RARE Concierge Participants | Amazon Web Services | Processor | United States |
| RARE Concierge Participants | Processor | United States | |
| RARE Concierge Participants | Grant Reviewers | Controller | United States |
| RARE Concierge Participants | Happy Fox | Processor | United States |
| RARE Concierge Participants | Higher Logic | Processor | United States |
| RARE Concierge Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Concierge Participants | Monday | Processor | United States |
| RARE Concierge Participants | Salesforce, Inc. | Processor | United States |
| Global Advocacy Alliance Participants | Amazon Web Services | Processor | United States |
| Global Advocacy Alliance Participants | Form Assembly | Processor | United States |
| Global Advocacy Alliance Participants | Processor | United States | |
| Global Advocacy Alliance Participants | Higher Logic | Processor | United States |
| Global Advocacy Alliance Participants | HubSpot, Inc. – USA | Processor | United States |
| Global Advocacy Alliance Participants | Salesforce, Inc. | Processor | United States |
| RARE Community Portal Participants | Amazon Web Services | Processor | United States |
| RARE Community Portal Participants | Form Assembly | Processor | United States |
| RARE Community Portal Participants | Higher Logic | Processor | United States |
| RARE Community Portal Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Community Portal Participants | Salesforce, Inc. | Processor | United States |
| Health Equity Grant Participants | Amazon Web Services | Processor | United States |
| Health Equity Grant Participants | Docusign | Processor | United States |
| Health Equity Grant Participants | Form Assembly | Processor | United States |
| Health Equity Grant Participants | Processor | United States | |
| Health Equity Grant Participants | Higher Logic | Processor | United States |
| Health Equity Grant Participants | HubSpot, Inc. – USA | Processor | United States |
| Health Equity Grant Participants | Salesforce, Inc. | Processor | United States |
| Mental Health Grant Participants | Amazon Web Services | Processor | United States |
| Mental Health Grant Participants | Docusign | Processor | United States |
| Mental Health Grant Participants | Form Assembly | Processor | United States |
| Mental Health Grant Participants | Processor | United States | |
| Mental Health Grant Participants | Higher Logic | Processor | United States |
| Mental Health Grant Participants | HubSpot, Inc. – USA | Processor | United States |
| Mental Health Grant Participants | Salesforce, Inc. | Processor | United States |
| RARE Meet-Up Grant Participants | Amazon Web Services | Processor | United States |
| RARE Meet-Up Grant Participants | Docusign | Processor | United States |
| RARE Meet-Up Grant Participants | Form Assembly | Processor | United States |
| RARE Meet-Up Grant Participants | Processor | United States | |
| RARE Meet-Up Grant Participants | Higher Logic | Processor | United States |
| RARE Meet-Up Grant Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Meet-Up Grant Participants | Salesforce, Inc. | Processor | United States |
| RARE Health Equity Forum Participants | Amazon Web Services | Processor | United States |
| RARE Health Equity Forum Participants | CVent | Processor | United States |
| RARE Health Equity Forum Participants | Processor | United States | |
| RARE Health Equity Forum Participants | Google Workspace | Processor | United States |
| RARE Health Equity Forum Participants | Higher Logic | Processor | United States |
| RARE Health Equity Forum Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Health Equity Forum Participants | Salesforce, Inc. | Processor | United States |
| RARE Health Equity Forum Participants | Slack | Processor | United States |
| RARE Advocacy Summit Participants | Amazon Web Services | Processor | United States |
| RARE Advocacy Summit Participants | CVent | Processor | United States |
| RARE Advocacy Summit Participants | Gmass | Processor | United States |
| RARE Advocacy Summit Participants | Processor | United States | |
| RARE Advocacy Summit Participants | Google Workspace | Processor | United States |
| RARE Advocacy Summit Participants | Higher Logic | Processor | United States |
| RARE Advocacy Summit Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Advocacy Summit Participants | Salesforce, Inc. | Processor | United States |
| RARE Advocacy Summit Participants | Slack | Processor | United States |
| RARE Compassion Program Participants | Amazon Web Services | Processor | United States |
| RARE Compassion Program Participants | Form Assembly | Processor | United States |
| RARE Compassion Program Participants | Gmass | Processor | United States |
| RARE Compassion Program Participants | Processor | United States | |
| RARE Compassion Program Participants | Higher Logic | Processor | United States |
| RARE Compassion Program Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Compassion Program Participants | RCP Participants | Controller | United States |
| RARE Compassion Program Participants | Salesforce, Inc. | Processor | United States |
| RARE Compassion Program Participants | Slack | Processor | United States |
| RARE Drug Development Symposium Stipend Participants | Amazon Web Services | Processor | United States |
| RARE Drug Development Symposium Stipend Participants | Form Assembly | Processor | United States |
| RARE Drug Development Symposium Stipend Participants | Processor | United States | |
| RARE Drug Development Symposium Stipend Participants | Higher Logic | Processor | United States |
| RARE Drug Development Symposium Stipend Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Drug Development Symposium Stipend Participants | Salesforce, Inc. | Processor | United States |
| RARE Drug Development Symposium Poster Participants | Amazon Web Services | Processor | United States |
| RARE Drug Development Symposium Poster Participants | Form Assembly | Processor | United States |
| RARE Drug Development Symposium Poster Participants | Processor | United States | |
| RARE Drug Development Symposium Poster Participants | Higher Logic | Processor | United States |
| RARE Drug Development Symposium Poster Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Drug Development Symposium Poster Participants | Salesforce, Inc. | Processor | United States |
| RARE Drug Development Symposium Participants | Amazon Web Services | Processor | United States |
| RARE Drug Development Symposium Participants | CVent | Processor | United States |
| RARE Drug Development Symposium Participants | Processor | United States | |
| RARE Drug Development Symposium Participants | Higher Logic | Processor | United States |
| RARE Drug Development Symposium Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Drug Development Symposium Participants | Salesforce, Inc. | Processor | United States |
| RARE Drug Development Symposium Participants | Slack | Processor | United States |
| Corporate Alliance Representatives | Amazon Web Services | Processor | United States |
| Corporate Alliance Representatives | Form Assembly | Processor | United States |
| Corporate Alliance Representatives | Higher Logic | Processor | United States |
| Corporate Alliance Representatives | HubSpot, Inc. – USA | Processor | United States |
| Corporate Alliance Representatives | Salesforce, Inc. | Processor | United States |
| RARE X Data Collection Program Participants | Across Healthcare | Processor | United States |
| RARE X Data Collection Program Participants | Processor | United States | |
| RARE X Data Collection Program Participants | OSDC Participants | Controller | United States |
| RARE X Data Collection Program Participants | Patient Advocacy Groups | Controller | United States |
| RARE X Data Collection Program Participants | Research Institutions and Projects | Controller | United States |
| RARE X Data Collection Program Participants | The Broad Institute | Processor | United States |
| Stay Connected Participants | Amazon Web Services | Processor | United States |
| Stay Connected Participants | Form Assembly | Processor | United States |
| Stay Connected Participants | Higher Logic | Processor | United States |
| Stay Connected Participants | HubSpot, Inc. – USA | Processor | United States |
| Stay Connected Participants | Salesforce, Inc. | Processor | United States |
| Program Interest Participants | Amazon Web Services | Processor | United States |
| Program Interest Participants | Form Assembly | Processor | United States |
| Program Interest Participants | Google Workspace | Processor | United States |
| Program Interest Participants | Higher Logic | Processor | United States |
| Program Interest Participants | HubSpot, Inc. – USA | Processor | United States |
| Program Interest Participants | Salesforce, Inc. | Processor | United States |
| Open Science Data Challenge Participants | Processor | United States | |
| Open Science Data Challenge Participants | Monday | Processor | United States |
| RARE Advocacy Summit Exhibitor Applicants | CVent | Processor | United States |
| RARE Advocacy Summit Exhibitor Applicants | Form Assembly | Processor | United States |
| RARE Advocacy Summit Exhibitor Applicants | Higher Logic | Processor | United States |
| RARE Advocacy Summit Exhibitor Applicants | HubSpot, Inc. – USA | Processor | United States |
| RARE Advocacy Summit Exhibitor Applicants | Salesforce, Inc. | Processor | United States |
| RARE Advocacy Summit Stipend Participants | Amazon Web Services | Processor | United States |
| RARE Advocacy Summit Stipend Participants | Form Assembly | Processor | United States |
| RARE Advocacy Summit Stipend Participants | Processor | United States | |
| RARE Advocacy Summit Stipend Participants | Higher Logic | Processor | United States |
| RARE Advocacy Summit Stipend Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Advocacy Summit Stipend Participants | Salesforce, Inc. | Processor | United States |
| RARE Advocacy Summit Poster Participants | Amazon Web Services | Processor | United States |
| RARE Advocacy Summit Poster Participants | Form Assembly | Processor | United States |
| RARE Advocacy Summit Poster Participants | Processor | United States | |
| RARE Advocacy Summit Poster Participants | Higher Logic | Processor | United States |
| RARE Advocacy Summit Poster Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Advocacy Summit Poster Participants | Salesforce, Inc. | Processor | United States |
| RARE Health Equity Forum Stipend Participants | Amazon Web Services | Processor | United States |
| RARE Health Equity Forum Stipend Participants | Form Assembly | Processor | United States |
| RARE Health Equity Forum Stipend Participants | Processor | United States | |
| RARE Health Equity Forum Stipend Participants | Higher Logic | Processor | United States |
| RARE Health Equity Forum Stipend Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Health Equity Forum Stipend Participants | Salesforce, Inc. | Processor | United States |
| RARE Health Equity Forum Poster Participants | Amazon Web Services | Processor | United States |
| RARE Health Equity Forum Poster Participants | Form Assembly | Processor | United States |
| RARE Health Equity Forum Poster Participants | Processor | United States | |
| RARE Health Equity Forum Poster Participants | Higher Logic | Processor | United States |
| RARE Health Equity Forum Poster Participants | HubSpot, Inc. – USA | Processor | United States |
| RARE Health Equity Forum Poster Participants | Salesforce, Inc. | Processor | United States |
| Survey Participants | Form Assembly | Processor | United States |
| Survey Participants | Processor | United States | |
| Survey Participants | Higher Logic | Processor | United States |
| Survey Participants | HubSpot, Inc. – USA | Processor | United States |
| Survey Participants | Salesforce, Inc. | Processor | United States |
| Champion of Hope Nominator | Form Assembly | Processor | United States |
| Champion of Hope Nominator | Google Workspace | Processor | United States |
| Champion of Hope Nominator | Higher Logic | Processor | United States |
| Champion of Hope Nominator | HubSpot, Inc. – USA | Processor | United States |
| Champion of Hope Nominator | Salesforce, Inc. | Processor | United States |
When a Processor or Controller is in a country outside the EU, we apply the necessary safeguards which may include, confirming whether the EC approves of transfers to the country, or whether we need to use the EC’s model contracts.
How do we look after personal data?
We limit the amount of personal data collected only to what is fit for the purpose, as described above. We restrict, secure and control all of our information assets against unauthorised access, damage, loss or destruction; whether physical or electronic. We retain personal data only for as long as is described above, to respond to your requests, or longer if required by law. If we retain your personal data for historical or statistical purposes we ensure that the personal data cannot be used further. While in our possession, together with your assistance, we try to maintain the accuracy of your personal data.
What are your data protection rights?
- We want to make sure that you are fully aware of all of your data protection rights. These are as follows:
- Right to access – You have the right to ask us for copies of your personal data. We may charge a small fee for this service.
- Right to rectification – You have the right to request that we correct any information that you believe is inaccurate. You also have the right to ask us to complete information that you believe is incomplete.
- Right to erasure – You have the right request that we erase your personal data under certain conditions.
- Right to restrict processing – You have the right to request that we restrict the processing of your personal data under certain conditions.
- Right to object to processing – You have the right to object to our processing of your personal data under certain conditions.
- Right to data portability – You have the right to request that we transfer the data that we have collected to another organization, or directly to you, under certain conditions.
- Right regarding automatic data processing – You have the right not to be subject to a decision based solely on automatic data processing. We do not perform any automated decision making using your personal data.
- If you ask to exercise a right, we have one month to respond to you. You can exercise a right by completing the online form at https://globalgenes.org/privacy-request or calling us at +1 (716) 427-2739 or emailing us at [email protected].
Privacy policies of other websites
- Our privacy policy applies only to our website and other interactions with us. If you click on a link to another website, read their privacy policy.
How to contact us
- Please do not hesitate to contact us if you have any questions about our privacy policy or the data we hold on you, or if you would like to exercise any of your data protection rights. You may contact us through our Data Protection Officer as follows:
Barry Weber
28 Argonaut, Suite 150
Aliso Viejo, CA 92656
Email: [email protected]
How to contact the appropriate authorities
- If you wish to lodge a complaint or if you feel that we have not addressed your concerns in a satisfactory manner, you may contact our Supervisory Authority as follows.
Data Protection Commissioner
Canal House
Station Road
Ireland
[email protected]
+353 57 868 4800
www.dataprotection.ie
Our EU/EEA and UK representatives
- ● If you are in the EU/EEA or UK, you may also reach us through DataRep, Global Genes’ EU/UK Data Protection Representative. Information about how to do so can be found at https://globalgenes.org/data-representative.