Global Genes is dedicated to improving the lives of over 30 million patients living with rare diseases in the United States and over 400 million worldwide.
As one of the largest patient communities in the world, we stand together to cultivate equity, diversity, and the inclusion of diverse perspectives.
We recognize the multitude of factors that shape individual perspectives and experiences including but not limited to ethnicity, race, gender, age, socioeconomic status, education, religion, geography, gender identity, sexual orientation, and legal status. We are committed to creating an organizational environment that values and respects the differences and similarities between individuals and cultures in order to advance equity and access to quality care throughout the rare disease community.
True progress can only be made when we include, listen, learn, and ultimately understand
Global Genes is here for you!
We must respect each other and recognize the essential contributions and perspectives that each of us make to the future of rare disease.
We call on our organization and our affiliated partners, organizations and individuals to prioritize and hold ourselves accountable in being vigilant in including, building and supporting an inclusive rare disease community that actively upholds a culture of diversity, inclusion and champions for equitable patient care.
We believe we all can do better.
Recognition and awareness is not sufficient and action is necessary. We are committed to internally recruiting and building talent with people from diverse backgrounds and partnering and supporting stakeholders who share our commitment to inclusivity. We also hold ourselves accountable by publicly sharing our progress.
Know Your Family History
It is important for you to know your family’s health history. It is one of the tools your doctor can use to keep you and your family healthy.Learn More
Health Equity RARE Impact Grant
To improve outreach strategies and address challenges that affect underserved and underrepresented patient communities.Learn More About the Grant
RARE Compassion Program
The program provides an opportunity for medical students and patients to learn, build compassion, and gain a better understandingRARE Compassion Program