Held the last day of February each year, World Rare Disease Day is an annual observance to raise awareness for 400 million people affected by rare disease globally. World Rare Disease Day 2022 is February 28th, 2022.

Here’s what can you do to help elevate the cause and shine a light on rare disease patients and caregivers around the world:


Add or Join a Rare Disease Event

Whether you’re organizing a local awareness event, a community fundraiser or a large-scale conference, you can add the event to the map in our new online Events Hub. To create an event, log in and create a RARE Portal profile. Looking for World Rare Disease Day events near you? Search the events in the Global Genes Events Hub.


Wear That You Care

What better way to show that you #CareAboutRARE than with one of these limited edition Fenrici masks? Order yours here today and share your support for rare disease all year round.

The Blue Denim Genes Ribbon is a symbol of hope for more than 7,000 small rare disease communities around the world. Wear your denim ribbon to show your support on World Rare Disease Day.

Post Why You Care About Rare

Download and print our Care About Rare sign to show your support for the rare disease community! Fill in your sign after printing, take a picture/selfie with the sign, and post your completed sign on social media. Tag us @Global Genes, and use the hashtags #RareDiseaseDay and #CareAboutRARE, for a chance to be highlighted on our social media channels.


Interact With Us on Social Media

Show us how you are celebrating and honoring World Rare Disease Day on social media. Tag us @GlobalGenes and make sure to use the hashtags #RareDiseaseDay and#CareAboutRARE, for a chance to be highlighted on our social media channels. Follow us on Instagram, Facebook, LinkedIn and Twitter to stay up-to-date.