World Rare Disease Day 2016


World Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

The 9th annual World Rare Disease Day will be held on Monday, February 29, 2016 (the rarest day of the year)! On this day, various activities take place in the United States, Europe, Russia, Japan and elsewhere around the world.

How To Get Involved

Global Genes will hold a variety of awareness raising activities starting on World Rare Disease Day, February 29th and throughout the month of March. Please join patients, families, friends, caregivers, scientists, physicians, researchers, health care providers, policy experts and our team in 2016 to raise rare and genetic diseases awareness. Here are ways you can get involved!

For more information, please contact Carrie Ostrea, Global Genes’ Manager of Advocacy.

Wear That You Care - Blue Denim Genes Ribbon™
Our popular campaign encouraging people to wear the Blue Denim Genes Ribbon™ and their favorite pair of jeans.
Place your order today to receive your Blue Denim Genes Ribbon™ in time for Rare Disease Day!
Find unique, creative, and fun ideas for rare disease day events you can host. Already have an event planned? Share it with our community!
Check our our 2016 RARE World Disease Day Planning Webinar for tips on how to create awareness for your specific rare disease, as well as the rare disease community as a whole!
Learn more about events happening for World Rare Disease Day 2016!
Find out where the Global Genes team will be traveling for World Rare Disease Day 2016!




Join our social media #CareAboutRARE movement by changing your profile picture to share how important rare disease awareness is to you! Click the image above to create your very own profile picture to help you bring awareness to your RARE Cause this #WRDD2016!

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