World Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.
The 9th annual World Rare Disease Day will be held on Monday, February 29, 2016 (the rarest day of the year)! On this day, various activities take place in the United States, Europe, Russia, Japan and elsewhere around the world.
How To Get Involved
Global Genes will hold a variety of awareness raising activities starting on World Rare Disease Day, February 29th and throughout the month of March. Please join patients, families, friends, caregivers, scientists, physicians, researchers, health care providers, policy experts and our team in 2016 to raise rare and genetic diseases awareness. Here are ways you can get involved!
For more information, please contact Carrie Ostrea, Global Genes’ Manager of Advocacy.
Join our social media #CareAboutRARE movement by changing your profile picture to share how important rare disease awareness is to you! Click the image above to create your very own profile picture to help you bring awareness to your RARE Cause this #WRDD2016!