World RARE Disease Day 2017

 

World RARE Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

The 10th annual World RARE Disease Day will be held on Tuesday, February 28, 2017! On this day, various activities take place all over the United States as well as countless locations around the world.

How To Get Involved

Global Genes will highlight a variety of awareness raising activities happening on World RARE Disease Day, February 28th. Please join patients, families, friends, caregivers, scientists, physicians, researchers, health care providers, policy experts and our team in 2017 to raise rare and genetic diseases awareness. Here are ways you can get involved!

For more information, please contact Global Genes at GlobalGenes@globalgenes.org.

Wear That You Care - Blue Denim Genes Ribbon™
Our popular campaign encouraging people to wear the Blue Denim Genes Ribbon® and their favorite pair of jeans to promote awareness.
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Due to overwhelming demand, we are currently SOLD OUT!
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Find unique, creative, and fun ideas for World RARE Disease Day events you can host. Already have an event planned? Share it with our community!
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Check out our RARE Webinars and join subject matter experts in discussions about pressing issues, ask questions, and learn about topics important to you, as well as the rare disease community!


Learn more about events happening for World RARE Disease Day 2017 here!


Find out where the Global Genes team will be traveling for World RARE Disease Day 2017 here!

 

Join our social media #CareAboutRARE movement by changing your profile picture to share how important rare disease awareness is to you! Click the image above to create your very own profile picture to help you bring awareness to your RARE cause this World RARE Disease Day!

The #CareAboutRARE image generator only works on Desktop/Laptop it will not work on Mobile/Tablet.