World Rare Disease Day is an annual observance held on the last day of February, February 29th in a Leap Year, to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.
The 9th annual World Rare Disease Day will be held on Monday, February 29, 2015. On this day, various activities take place in the United States, Europe, Russia, Japan and elsewhere around the world.
How To Get Involved
Global Genes will hold a variety of awareness raising activities starting on World Rare Disease Day, February 29th and throughout the month of March. Please join patients, families, friends, caregivers, scientists, physicians, researchers, health care providers, policy experts and our team in 2016 to raise rare and genetic diseases awareness. Here are ways you can get involved!
Looking for ideas to plan your event? Be sure to check out our Rare Disease Day planning webinar!
For more information, please contact Carrie Ostrea, Advocacy Manager of Global Genes.
Join our social media “rare disease day” campaign by changing your profile
and cover pictures to share how important rare disease awareness is to you!