Held the last day of February each year, World Rare Disease Day is an annual observance to raise awareness for 400 million people affected by rare disease globally. This February 29th, what can you do to help elevate the cause and shine a light on rare disease patients and caregivers around the world?
Add or Join a Rare Disease Event
Whether you’re organizing a local awareness event, a community fundraiser or a large-scale conference, you can add the event to the map in our new online Events Hub. To create an event, log in and create a RARE Portal profile. Looking for World Rare Disease Day events near you? Search from hundreds of events in the Global Genes Events Hub.
Wear that you Care
The Blue Denim Genes Ribbon is a symbol of hope for more than 7,000 small rare disease communities around the world. Wear your denim ribbon to show your support on World Rare Disease Day or request ribbons for a local event. Raising awareness in your place of work? Ask your team to show their support by wearing blue jeans and denim ribbon on February 29th. Deadline for domestic ribbon orders is February 20. For international orders, please order by February 12.
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Rare Disease Week on Capitol Hill
Be on the lookout for members of the Global Genes team during Rare Disease Week on Capitol Hill. We look forward to meeting with the rare disease community to drive change!