Held the last day of February each year, World Rare Disease Day is an annual observance to raise awareness for 400 million people affected by rare disease globally. This February 29th, what can you do to help elevate the cause and shine a light on rare disease patients and caregivers around the world?

Join the RARE Portal

Let’s collaborate. It takes just a few minutes to create a profile in the RARE Portal and you’ll be glad you did. By indicating your disease affiliation and role in rare, you can make valuable connections, receive personalized resources and information on clinical trials. What’s more, you’ll help enhance the knowledge and engagement of others across the rare disease community by adding your events and sharing resources and your story.

Add or Join a Rare Disease Event

Whether you’re organizing a local awareness event, a community fundraiser or a large-scale conference, you can add the event to the map in our new online Events Hub. To create an event, log in and create a RARE Portal profile. Looking for World Rare Disease Day events near you? Search from hundreds of events in the Global Genes Events Hub.

Wear that you Care

The Blue Denim Genes Ribbon is a symbol of hope for more than 7,000 small rare disease communities around the world. Wear your denim ribbon to show your support on World Rare Disease Day or request ribbons for a local event. Raising awareness in your place of work? Ask your team to show their support by wearing blue jeans and denim ribbon on February 29th.