Rare Disease Day 2017


Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

The 10th annual Rare Disease Day will be held on Tuesday, February 28, 2017 (the rarest day of the year)! On this day, various activities take place in the United States, Europe, Russia, Japan and elsewhere around the world.

How To Get Involved

Global Genes will hold a variety of awareness raising activities starting on Rare Disease Day, February 28th and throughout the month of March. Please join patients, families, friends, caregivers, scientists, physicians, researchers, health care providers, policy experts and our team in 2017 to raise rare and genetic diseases awareness. Here are ways you can get involved!

For more information, please contact Carrie Ostrea, Global Genes’ Senior Manager of Patient Engagement.

Wear That You Care - Blue Denim Genes Ribbon™
Our popular campaign encouraging people to wear the Blue Denim Genes Ribbon® and their favorite pair of jeans.
Place your order today to receive your Blue Denim Genes Ribbon® in time for Rare Disease Day!
Find unique, creative, and fun ideas for rare disease day events you can host. Already have an event planned? Share it with our community!
Check our our 2017 Rare Disease Day Planning Webinar for tips on how to create awareness for your specific rare disease, as well as the rare disease community as a whole!

Learn more about events happening for Rare Disease Day 2017 here!

Find out where the Global Genes team will be traveling for Rare Disease Day 2017 here!




Join our social media #CareAboutRARE movement by changing your profile picture to share how important rare disease awareness is to you! Click the image above to create your very own profile picture to help you bring awareness to your RARE cause this Rare Disease Day!

The #CareAboutRARE image generator only works on Desktop/Laptop it will not work on Mobile/Tablet.