Held the last day of February each year, World Rare Disease Day is an annual observance to raise awareness for 350 million people affected by rare disease globally. This February 28th, what can you do to help elevate the cause and shine a light on rare disease patients and caregivers around the world?
Share Why You #CareAboutRare
Make your voice heard as you rally for rare. You can download and print the #CareAboutRare sign to show the world why you care about rare this February. Take a selfie, and tag it with #CareAboutRare and #WRDD2019 on your favorite social channels. If photos aren’t your thing, download the social sharable.
Join the RARE Portal
Let’s collaborate. It takes just a few minutes to create a profile in the RARE Portal and you’ll be glad you did. By indicating your disease affiliation and role in rare, you can make valuable connections, receive personalized resources and information on clinical trials. What’s more, you’ll help enhance the knowledge and engagement of others across the rare disease community by adding your events and sharing resources and your story.
Add or Join a Rare Disease Event
Whether you’re organizing a local awareness event, a community fundraiser or a large-scale conference, you can add the event to the map in our new online Events Hub. To create an event, log in and create a RARE Portal profile. Looking for World Rare Disease Day events near you? Search from hundreds of events in the Global Genes Events Hub. Need materials for your event? Download the World Rare Disease Day poster.
Wear that you Care
The Blue Denim Genes Ribbon is a symbol of hope for more than 7,000 small rare disease communities around the world. Wear your denim ribbon to show your support on World Rare Disease Day or request ribbons for a local event. Raising awareness in your place of work? Ask your team to show their support by wearing blue jeans and denim ribbon on February 28th.
Please keep in mind that ribbon orders made after February 21st, are not guaranteed to be filled in time for World Rare Disease Day. Ribbon orders of more than 100 are also unable to be accommodated at this time.