About us

Career Opportunities

Our passion runs deep. Helping people around the world isn’t just a tagline for us — we do it for real. Discover the possibilities.

Join Our Team

We are a team of dedicated advocates who work to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activist for their disease. We are always interested in hearing from those that have a passion for our mission and skill and experience that may contribute to our achieving our mission.

Please submit resumes and cover letters to [email protected]s.org.

Program Associate


Providing education for and connecting members of the rare disease community to each other through live and virtual events annually is a top priority at Global Genes. This role requires an enthusiastic, proactive individual, and outstanding communicator with the ability to deliver incredible customer service, organization, and collaboration.

Reports To: Associate Director, Patient Programs

Status: Full-Time

Location: Virtual/Remote

Salary: $48,000-$60,000

Please email resume and cover letter to [email protected]

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