Our passion runs deep. Helping people around the world isn’t just a tagline for us — we do it for real. Discover the possibilities.
Join Our Team
We are a team of dedicated advocates who work to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activist for their disease. We are always interested in hearing from those that have a passion for our mission and skill and experience that may contribute to our achieving our mission.
Please submit resumes and cover letters to [email protected].
Communications Manager, Research Programs
The Communications Manager, Research Programs will support the Community Engagement and Researcher engagement efforts for the RARE-X Research Program, as well as other key research readiness initiatives. This role is critical to the growth and success of RARE-X and the support of our patient community partners and stakeholders.
The right candidate will be a well rounded communications professional with experience in patient advocacy, biopharma and/or healthcare. Life sciences or research experience is highly desired. This team member will implement communications programs to engage deeply and support advocates as it relates to the RARE-X research program.
Community engagement, outreach, capacity building and education are at the center of the Support and Education team’s work at Global Genes. This work is highly visible and valued in the rare disease community. The Program Coordinator position is critical in ensuring the smooth and effective delivery of the Support and Education programs at Global Genes.
This role requires a confident, compassionate individual who is comfortable working with various rare disease stakeholders including rare disease patient advocacy groups leaders, patients, caregivers, families and more to build rapport and establish trust.
Translation Support Intern/Associate
Global Genes is looking for a looking for a Translation Support Intern to join our team for a four to five-month period lasting from September to December 2023. The internship requires 10-15 hours of remote work per week. This position may evolve into a longer term and potentially full-time position.
The ideal candidate will have base-level knowledge in data collection / structure and be enrolled in an undergraduate or graduate degree program in biology, chemistry, or related fields.