Career Opportunities

Join Our Team

We are a team of dedicated advocates who work to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activist for their disease. We are always interested in hearing from those that have a passion for our mission and skill and experience that may contribute to our achieving our mission.

Please submit resumes and cover letters to [email protected].

Senior Director, RARE-X Research Program

ROLE SUMMARY:

As the Director of the RARE-X Research Program, you will be responsible for an innovative research program developing patient-owned data to characterize rare disorders and capture patient and caregiver experience. Launched in 2021, the RARE-X research program enables robust data collection, sharing, analysis and federation of natural history data for rare disease. RARE-X is a cross-disorder research program, currently collecting data for over 50 rare disease, including neurodevelopmental, neurodegenerative, neuromuscular, immunology, renal, and mitochondrial conditions.

Translation Support Intern/Associate

ROLE SUMMARY:

Global Genes is looking for a looking for a Translation Support Intern to join our team for a four to five-month period lasting from September to December 2023. The internship requires 10-15 hours of remote work per week. This position may evolve into a longer term and potentially full-time position.

The ideal candidate will have base-level knowledge in data collection / structure and be enrolled in an undergraduate or graduate degree program in biology, chemistry, or related fields.