Join Global Genes Advocacy / Local Leaders Program
Do you want to help change the way the world looks at people fighting rare and genetic diseases?
While rare diseases may be different, the health and support challenges faced by people and families is very similar. With only 5% of rare diseases having approved drug treatments, millions of people are left to fight on their own and without treatments and cures.
To effect real change, we must band our small rare and genetic disease groups together and create a unified and powerful voice that can be heard on an international level.
Global Genes Local Leaders can be from any City, State or Country and can represent any rare or genetic disease.
Get involved today. Hope really does begins with you!