From Our Affiliates
“Chocolate Bar” Boys Still In Need of Donations to Meet $1M Goal

This week we give thanks for our son Dylan who…

Professor Jonathan Weber
Call for Rare Disease Research with Pfizer: Interview with Jonathan Weber
Imperial scientists are being asked to submit proposals for rare disease research as part of a collaboration with Pfizer to research new… Continue Reading
The Employment Plan: You Are Not Alone
This is an excerpt from author Joan Friedlander’s book Business From Bed. Illness, typically considered a sign of weakness, is a taboo… Continue Reading
Life with Lowe: Getting the News
Make sure to catch up on my last post! I had just taken my daughter to pre-school for the morning when I got the call from the geneticist… Continue Reading
RARE on the Red Carpet: Gillian Anderson
Gillian Anderson is a much loved stage, television and film actress who skyrocketed to American fame in the 1990s. She perhaps best known… Continue Reading
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Coalition Duchenne Awards UCLA Professor Lotus Award for Work on Duchenne Muscular Dystrophy
The #RAREDaily follows many sister organizations, including the hard-working team at Coalition Duchenne, a fellow Newport Beach based… Continue Reading
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Global Genes Announces Formation of Medical Scientific Advisory Board—Adds New Members to Board of Directors
ALISO VIEJO, Calif. — November 24, 2014 — Global Genes™ announced today the formation of an inaugural leadership team, the Medical and… Continue Reading
PKU Life: “What the Heck is Phenylketonuria?”
Hello there! Here we are, at the beginning of a new journey. This is the first of what I hope to be many articles documenting my personal… Continue Reading