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Life with Lowe: Getting the News

Make sure to catch up on my last post! I had just…

Phenylketonuria
PKU Life: “What the Heck is Phenylketonuria?”
Hello there! Here we are, at the beginning of a new journey. This is the first of what I hope to be many articles documenting my personal… Continue Reading
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RARE Parenting: Is Co-Sleeping a Bad Idea?
According to the Center for Disease Control, co-sleeping is quite a common occurrence with roughly 68% of all children enjoying co-sleeping… Continue Reading
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Utah Teen Football Player Diagnosed with Evans Syndrome
by Amy Donaldson As Andy Gunther sat with his wife in a hospital waiting room, the only thing that kept the exhaustion at bay was fear.… Continue Reading
Metabolic_Disease_Rare
Three-Year-Old Kennedy with Rare Metabolic Disorder Gets Liver Transplant
A 3-year-old girl was the first to receive a liver transplant to treat an extremely rare metabolic disease that has been diagnosed in only… Continue Reading
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Support Changes Things: Life with Klippel-Feil Syndrome
I was diagnosed with Klippel-Feil-Syndrome and Scoliosis at birth. Immediately the doctors noticed that there was something different about… Continue Reading
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Catching Up With The RARE Daily: Sara’s Army, The Doctors, and Cystic Fibrosis Foundation’s Big News
Need your quick fix of RARE news stories? Check out the latest episode of Catching Up to hear about everything you might have missed! Did… Continue Reading
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David R. Cox Prize for Rare Compassion: Winner Announced!
The winner of the David R. Cox Prize for Compassion was announced this week. With support from Global Genes, the Student Advocates for… Continue Reading