The Global Genes Project
Building awareness and communities to support and find treatments for Rare Diseases and Genetic Conditions
Where there is support, there is hope!
Sign up to stay up-to-date on the latest Global Genes news and happenings around the globe.
Together we can make a difference in the lives of millions living with rare and genetic diseases.
hope begins with you
Do you have a rare story of hope and courage to share?
If so, we want to hear from you! Simply submit your story by following the steps and using the form below.
Step 1: If you are submitting on behalf of someone other than yourself (ie. friend or minor child), please obtain permission BEFORE you submit this form. Click the check box that confirms you have permission to submit this story and that you agree to have the story published on our website and social media pages.
Step 2: BEFORE filling out this form, make sure you have a high-res digital picture available and ready to upload of the individual/family the story is about. We prefer a square aspect ratio photo (minimum 400px by 400px, preferably larger).
Step 3: Complete the form below, including uploading your picture.
Once you submit this form, you will receive a confirmation email and further information regarding your story submission.
If you have questions, please email the Director of our program,
28 Argonaut, Suite 150Aliso Viejo, CA 92656
(+1) 949-248-RARE (7273)