PKU: What is Normal?

Kevin Alexander is PKU (Phenylketonuria) Survivor

If you’ve read my blog these last few weeks you know it’s been a crazy time in my world recently. But things seem to be returning to normal. I say “normal”, but what is “normal”? I mean, some things are fixed and certain. The sky […]

PKU: Time To Live

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Editor’s Note:  Kevin Alexander has Phenylketonuria (PKU), a rare inherited metabolic disorder.  Kevin shares with us his vision for a blog: One vision that I have for my blog is for it to be a place where I can just be real with you. It’s […]

Rare Disease Bloggers Unite With Blog Hop to Raise Awareness for World Rare Disease Day 2012 and 1 Million For Rare™ Campaign

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Rare Disease Bloggers Unite With “Blog Hop” to Raise Awareness for World Rare Disease Day 2012 and 1 Million For Rare† Campaign DANA POINT, Calif., Jan. 30, 2012 /PRNewswire via COMTEX/ — The R.A.R.E. Project(TM) ( www.rareproject.org ) and The Global Genes Project(TM) ( www.globalgenesproject.org […]