Cystinuria – Education Is Key In Finding Treatments For Rare Disorder That Causes Painful Cystine Kidney Stones

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There is something about the feeling of helplessness and feeling unimportant that breaks my heart. As much as I read, write and edit the Global Genes blog on a daily basis about men, woman and children suffering from rare and genetic diseases, I am equally [...]

Severe Fibromyalgia Will Not Stop Michael Duturbure From Climbing Macchu Pichu To Raise “Fibro” Awareness

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In 2003, Fibromyalgia (Fibro) started taking over my body. My body went into full spasm and became so tight that it twisted and dislocated my jaw. I could barely walk for two years and have suffered from chronic pain and fatigue for almost 10 years now. [...]