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Tag: cystic fibrosis foundation

A total of 5 posts are filed under cystic fibrosis foundation
Could B-Corporations Be a New Investment Model for Non-Profits?
Maureen Mcarthur Hart Reports: The Cystic Fibrosis Foundation (CFF) announced last week that the organization has sold for $3.3 billion its… Continue Reading
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Connexion Healthcare Celebrates WRDD with Local Fundraiser, Wear That You Care
Rare Disease Day is an international event held on the last day of February each year. The goals are to raise awareness about rare diseases… Continue Reading
Cystic Fibrosis Foundation
The Most Important New Drug of 2012
The Food and Drug Administration looks set for a great 2012.  With a few days left to go, it has approved 40 new drugs and vaccines, one of… Continue Reading
RDLA is hosting an Advocates Luncheon & Conference Call on September 12, 2012.  RSVP is required for attendance.
FDA User Fee Bill Is Landmark Legislation – Major Wins for the Rare Disease Patient Community Led by RDLA
Wednesday, June 27, 2012, Washington, DC — Rare Disease Legislative Advocates (RDLA) hails House and Senate passage of The Food and Drug… Continue Reading
Rare Disease Drugs: A $1 Trillion Market?
Matthew Herper The Medicine Show; FORBES November 2010 Right now drugs for rare disorders are the sweet spot of the biotechnology industry.… Continue Reading