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Tag: global genes fund

A total of 8 posts are filed under global genes fund
Nature.com Reports – Rare Disease Studies Seek Online Giving
The Global Genes Fund seeks online donations for conditions such as progeria, a rare disorder that causes accelerated aging. Those wanting… Continue Reading
The Global Genes Fund: Innovations for medical science in the internet age
November 16, 2010 Emil Kakkis, Kakkis Everylife Foundation Blog When I started out doing research and trying to get a simple treatment for a… Continue Reading
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7,000 Bracelets For Hope™ – A Rare Disease Awareness Campaign
Global Genes Project Launches Blue Denim Inspired ‘Cause Bracelets’ To Be Distributed To Families Facing 7000 Different Types of Rare… Continue Reading
Patients 2.0 – Health 2.0 – Rare Disease Patients invited!
Join Health 2.0 as they work to plan the next phase of action for patients, citizens and anyone passionate about improving healthcare,… Continue Reading
Rare Kids Need Your Votes!
{click this logo for fast voting link!} Catch up with the Children’s Rare Disease Network/Global Genes Project idea: Idea Details,… Continue Reading
Vote4Hope Campaign – from Global Genes Project and Children's Rare Disease Network
Pepsi Refresh Grant Competition inspires rare disease groups to compete for much needed funds! Over the past few months we have had the good… Continue Reading
The Global Genes Project Aims to Battle Rare Disease Through the 'Vote4Hope' Campaign and Pepsi Refresh Competition
The Global Genes Project Aims to Battle Rare Disease Through The ‘Vote4Hope’ Campaign and Pepsi Refresh Competition Over 15… Continue Reading