Three Brothers Afflicted With Rare X-Linked Agammaglobulinemia (XLA) Are Sticking It To Their Rare Disease

Four brothers. Three - Harrison, Holden & Davis - have a genetic, inherited immunodeficiency called x-linked agammaglobulinemia (or XLA).

We have four boys: Harrison (12), Holden & Langford (8) and Davis (7). Three of our four sons (Harrison, Holden & Davis – not Langford, Holden’s twin) have a genetic, inherited immunodeficiency called x-linked agammaglobulinemia, or XLA for short. XLA is in the family of […]

After 30 Years – Brother Gets Diagnosed with WHIM Syndrome

Daven Edwards is battling WHIM Syndrome

“I think I know what you have.” Those words spoken by Dr. Wendell Richmond at Hinsdale Hospital in Chicago in 2006 changed everything for my brother Daven. For the better part of his 30 years, Daven had been sick, sometimes for weeks at a time, […]