Building awareness and communities to support and find treatments for Rare Diseases and Genetic Conditions
Just one moment… As a documentary filmmaker sometimes that’s all I’m looking for. One moment that defines the story, something I couldn’t have planned for in pre-production, something that would never make it to the shot list because I couldn’t have imagined it. And it’s [...]
Kevin Alexander, a regular Global Genes Contributer, PKU advocate and film maker, released a statement this morning announcing a new project. He is currently in pre-production on a documentary web series called PKULife.tv. The series of short forums will profile individuals living with or otherwise [...]
I don’t know when it happened. Maybe it was when I got my first “real” job and the stability that comes with traditional employment. Maybe it was when I graduated college and looked forward to taking a few years off of school before I would [...]
A Social Justice Issue OK, I’m just going to be real with you. I’ve tried to sit down and write this particular entry numerous times… But every time instead of clicking “Publish” when I’m finished I clicked “Delete” instead. It just wouldn’t come out right. [...]
If you’ve read my blog these last few weeks you know it’s been a crazy time in my world recently. But things seem to be returning to normal. I say “normal”, but what is “normal”? I mean, some things are fixed and certain. The sky [...]
Well, my last blog entry was a bit more serious and somber than most of my posts. And like I said, I don’t want to be fake on this blog. I think it’s very important to admit when you are having a difficult time. I’ve [...]
