Rare Disease Congressional Caucus Briefing Action Alert

Rare Disease Congressional Caucus Briefing, November 14, 2012 with RDLA, National Health Council and Shire

On Wednesday, November 14, RDLA, National Health Council, and Shire, in coordination with Rare Disease Caucus Co-Chairs Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY) will be participating in a briefing to discuss next steps for rare disease policy. Help ensure the Rare Disease Caucus Briefing is a success! How can you help? By following [...]

Rare Disease and Orphan Drug Leadership Congress – “No Disease is too Rare to Deserve Treatment”

Eileen O'Brien, Siren Interactive's Director of Search & Innovation.  Eileen has more than 16 years of digital healthcare marketing experience and is considered an opinion leader on social media

I was tweeting fast and furiously at the 7th Annual Rare Disease and Orphan Drug Leadership Congress on July 18 and 19 in Philadelphia, and here are some of the insights I captured. Stephanie Okey from Genzyme did an excellent job moderating and set the [...]