The Balancing Act® Producers Celebrate Wear That You Care™ on Feb 28th Episode in Honor of Rare Disease Day

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  Producers at The Balancing Act® on Lifetime are wearing their ribbons in support of Wear That You Care™. Global Genes Project a leading patient advocacy organization representing the rare and genetic disease community, is inviting industry partners, patients, caregivers, family and friends of the […]

Global Genes Project Unites Advocates on World Rare Disease Day 2012

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Rare Pictures of Hope™ Campaign Launched to Spotlight Those Suffering from Rare Diseases NIH and FDA Unite To Hold Rare Disease Awareness and Educational Events DANA POINT, Calif., Feb. 29, 2012 /PRNewswire-USNewswire/ — Hope – It’s In Our Genes.™  Today, on the rarest of calendar […]

Global Genes Project Unites Advocates on Worldwide Rare Disease Day 2012

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Rare Pictures of Hope™ Campaign Launched to Spotlight Those Suffering from Rare Diseases NIH and FDA Unite To Hold Rare Disease Awareness and Educational Events DANA POINT, CA – February 29, 2012 – Hope – It’s In Our Genes.™  Today, on the rarest of calendar […]

World Rare Disease Day Efforts Underway – Wear That You Care

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‘Wear That You Care’ is BACK!!  Supporting rare disease worldwide! Last year, thousands of people around the globe joined the campaign in support of World Rare Disease Day, which takes place this upcoming February, 29, 2012 – a truly RARE Day!!!   Organizations hosted Wear Jeans […]

DNA Day – “Wear That You Care”

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About National DNA Day National DNA Day commemorates the successful completion of the Human Genome Project in 2003 and the discovery of DNA’s double helix by James Watson and Francis Crick in 1953. This annual celebration offers students, teachers and the public many exciting opportunities […]

World Rare Disease Day for the Joshi Family – A Family Story

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I always feel mixed emotions in my community when World Rare Disease Day rolls around each year.  I feel empowered because I have been part of The Global Genes Project for over a year and I know I have many tools at my disposal for […]

Monday, February 28, 2011 — We Recognize World Rare Disease Day!

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In recognition of the millions of children and their families affected by rare disease, Monday we celebrate. Monday we take a few minutes to reflect on the efforts that are taking place daily and globally in the fight against rare disease. Please join us in […]