Building awareness and communities to support and find treatments for Rare Diseases and Genetic Conditions
Rare Disease Day is celebrated worldwide on the last day of February, so this year we’ll celebrate on Thursday, February 28th. For 2013 the theme for Rare Disease Day is “Rare Disorders Without Borders.” Nowhere is this more evident than the online space, where rare [...]
For orphan drugs, the marketing strategy should include increasing awareness and education about the disease. This is a key mission for many rare disease advocacy groups. So in the orphan drug space, the best marketing has advocacy as a part of it. Siren invited a [...]
