Updated in 2023

Two year old Amris Bedford, daughter of Marlee Walker Bedford and Ross Bedford, was diagnosed with a very rare and aggressive brain cancer known as AT/RT (Atypical Teratoid Rhaboid Tumor). Amris is currently at St. Jude Children’s Hospital undergoing treatment and has recently started her second round of chemotherapy.

Atypical Teratoid Rhabdoid Tumor (AT/RT) is a rare and deadly tumor diagnosed in childhood. AT/RT most commonly presents as a brain tumor, but can occur elsewhere in the central nervous system including the spinal cord. There currently is no known cure for AT/RT.

A benefit for Amris is being held Saturday, September 15, 2012, from 2pm-12am.  Live music will be provided by Dave and Jared, Rhonda and the Relics, The Woodgrains, The Droppers, and The Last Waltz Ensemble.  Tickets are available at Better Hometown Blackshear.

For more information, visit Amris Jam on Facebook.

2023 Updates:

Amris’ courage lives on and she continues to  inspire others in a touching commercial for St. Jude Children’s Hospital now airing on television nationally.

Watch the St. Jude video here

Did you know all childhood
cancers are rare diseases?

Resources listed in the  Rare Disease and Disability Resources by Sierra Phillips

Digging Deep: Offers every young person access to the tools he or she needs to build emotional resilience. With support from philanthropist and survivor of young adult brain cancer, Sheri Sobrato, we built Shadow’s Edge, the first FREE self-help mobile game designed for teens and young adults to tap into their healing power of self-expression.

smilesforsophieforever:  dedicated to honoring Sophie’s memory by providing financial support to those families burdened by pediatric brain tumors 

A blog on Courageous Parents Network about the complicated feelings around Childhood Cancer Awareness (especially after the loss of a child) by Amy Graver.