Klippel-Feil Syndrome Alliance To Host First Annual KFS Awareness Day Exactly 100 Years After Discovery of Rare Disease
July 27, 2012
On Monday, August 6th, Klippel-Feil Syndrome Alliance will have its first annual awareness day. Exactly one hundred years ago in 1912, Klippel-Feil Syndrome (KFS) was first reported by occupants of France, Maurice Klippel and André Feil.
KFS is a rare skeletal condition characterized by abnormal union or fusion (congenital synostosis) of two or more bones of the spinal column (vertebrae) within the neck.
The first annual awareness day will signify our charge to undertake advocacy as an alliance and bring forth positive change for those effected by Klippel-Feil Syndrome.
We have a common thread. Let’s stand as one, each wearing our key, for those affected by Klippel-Feil Syndrome.
Organization: Klippel-Feil Syndrome Alliance
Submitted by: Sharon Rose Nissley
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