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Adult Opsoclonus Myoclonus Syndrome
Overview
Type of disease: Rare conditions
Opsoclonus myoclonus syndrome (OMS) is a disorder typically seen in children, but in adult OMS symptoms do not appear until later in life. The disease is extremely rare, affecting only 1 in 10,000,000 people per year. The cause is unknown. Symptoms include rapid uncontrolled eye movements (opsoclonus), challenges speaking or understanding others, difficulty sleeping, irritability, and muscle twitches. Typically with adult onset OMS, symptoms are less severe or debilitating than those of the childhood disorder. The disorder can be managed with various medications, but there is no definite cure for OMS.
Support Organizations
- Opsoclonus Myoclonus Support Network, Inc. Disease Support Organization
- Contact a Family General Support Organization
- Advocacy for Patients with Chronic Illness, Inc. General Support Organization
