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Adult Opsoclonus Myoclonus Syndrome
Overview
Type of disease: Rare conditions
Opsoclonus myoclonus syndrome (OMS) is a disorder typically seen in children, but in adult OMS symptoms do not appear until later in life. The disease is extremely rare, affecting only 1 in 10,000,000 people per year. The cause is unknown. Symptoms include rapid uncontrolled eye movements (opsoclonus), challenges speaking or understanding others, difficulty sleeping, irritability, and muscle twitches. Typically with adult onset OMS, symptoms are less severe or debilitating than those of the childhood disorder. The disorder can be managed with various medications, but there is no definite cure for OMS.
Support Organizations
- PID UK General Support Organization
- Tracheo-Oesophageal Fistula Support General Support Organization
- Friend for Life Cancer Support Network General Support Organization
