Cystic fibrosis

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Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version April 2024

Newly diagnosed with
Cystic fibrosis?

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Advocacy Organizations

Emily’s Entourage

Emily’s Entourage accelerates research and drug development for the final 10% of people with cystic fibrosis. By providing leadership and coordination, EE drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite treatments and a cure for the final 10% who are waiting with bated breath.

Clinical Trials

For a list of clinical trials in this disease area, please click here.