Synonyms: Familial brain cavernous angioma | Familial cerebral cavernoma | Hereditary brain cavernous angioma | Hereditary cerebral cavernoma | Hereditary cerebral cavernous malformation
A rare capillary-venous malformations characterized by closely clustered irregular dilated capillaries that can be asymptomatic or that can cause variable neurological manifestations such as seizures non-specific headaches progressive or transient focal neurologic deficits and/or cerebral hemorrhages.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version June 2026
Newly diagnosed with
Familial cerebral cavernous malformation?
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Advocacy Organizations
Alliance to Cure Cavernous Malformation (formerly Angioma Alliance)
It is our mission to drive a cure and improve lives for all affected by cavernous malformation. We envision a world with a permanent cure for cavernous malformation – available, accessible, and affordable for all.
Collaborative Research Advocacy for Vascular Anomalies Network (CaRAVAN)
As the research-based umbrella organization for all vascular anomalies, we are on a mission to develop a unified network of patients and their families, advocates, researchers, and clinicians who influence research from initial concept and design to patient care delivery
Project FAVA
Project FAVA is a 501(c)(3) non-profit patient advocacy group that promotes awareness of fibro-adipose vascular anomalies, educates patients, their families, and the global community, and provides helpful resources to those with FAVA. Project FAVA also advances research to move the needle towards more effective and less invasive treatment options for FAVA patients.
Uganda Alliance of Patients Organization
Supporting patients to access quality, safe and patient-centered healthcare services.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.