Necrotizing enterocolitis

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Necrotizing enterocolitis

A rare intestinal disease characterized by potentially life-threatening inflammatory bowel necrosis predominantly affecting preterm neonates. Patients may present with feeding intolerance lethargy temperature instability abdominal distention blood-stained stools diarrhea bilious vomiting apnea and signs of sepsis. Radiographic features include pneumatosis intestinalis portal venous gas presence of fixed dilated intestinal loops bowel wall edema and (in case of bowel perforation) pneumoperitoneum.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version April 2024

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Necrotizing enterocolitis?

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Advocacy Organizations

NEC Society

The NEC Society is the world's leading NEC-focused nonprofit. We were founded by a bereaved mother and now bring together clinicians, patient-families, and researchers to advance NEC research, education, and advocacy. Together, we are working tirelessly to build a world without necrotizing enterocolitis.

Clinical Trials

For a list of clinical trials in this disease area, please click here.