Necrotizing enterocolitis
A rare intestinal disease characterized by potentially life-threatening inflammatory bowel necrosis predominantly affecting preterm neonates. Patients may present with feeding intolerance lethargy temperature instability abdominal distention blood-stained stools diarrhea bilious vomiting apnea and signs of sepsis. Radiographic features include pneumatosis intestinalis portal venous gas presence of fixed dilated intestinal loops bowel wall edema and (in case of bowel perforation) pneumoperitoneum.
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Reference: Access aggregated data from Orphanet at Orphadata.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.
Newly diagnosed with
Necrotizing enterocolitis?
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Advocacy Organizations
NEC Society
The NEC Society's mission is to build a world without necrotizing enterocolitis (NEC) through research, advocacy, and education.
Care-for-Rare America Inc
To establish a global alliance in order to identify the genetic causes of rare diseases and develop effective treatments, following a three-stage approach: recognize, understand, cure.
Help Hope Live
Help Hope Live assists individuals living with catastrophic injuries and illnesses to fundraise toward their medical expenses and related costs.
Clinical Trials
For a list of clinical trials in this disease area, please click here.