Primary sclerosing cholangitis

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Primary sclerosing cholangitis

Synonyms: PSC

Primary sclerosing cholangitis (PSC) is a rare slowly progressive liver disease characterized by inflammation and destruction of the intra- and/or extra-hepatic bile ducts that lead to cholestasis liver fibrosis liver cirrhosis and ultimately liver failure.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version December 2023

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Primary sclerosing cholangitis?

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Advocacy Organizations

PSC Partners

The mission of PSC Partners Seeking a Cure is to drive research to identify treatments and a cure for primary sclerosing cholangitis while providing education and support for those impacted by this rare disease. Founded in 2005, PSC Partners Seeking a Cure is a 501(c)(3) nonprofit organization. The various programs give support to patients, caregivers, families, and friends, educate patient

Clinical Trials

For a list of clinical trials in this disease area, please click here.