Primary sclerosing cholangitis

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Synonyms: PSC

Primary sclerosing cholangitis (PSC) is a rare slowly progressive liver disease characterized by inflammation and destruction of the intra- and/or extra-hepatic bile ducts that lead to cholestasis liver fibrosis liver cirrhosis and ultimately liver failure.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version June 2024

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Primary sclerosing cholangitis?

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Advocacy Organizations

PSC Partners

The mission of PSC Partners Seeking a Cure is to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by this rare disease. We are a U.S.-based nonprofit with global reach via our international research grants, collaborations, international patient registry, and support of the of the PSC community.

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Clinical Trials

For a list of clinical trials in this disease area, please click here.